Brinlee's journey, and ours
Our daughter Brinlee is twelve. A rare, medication-resistant epilepsy has slowly taken the spunky, brilliant girl we knew and made her dependent on around-the-clock care. This is where we share who she is, what our family lives each day, and, for anyone who wants to understand, what a condition like hers really means.
Who we are
Brinlee, her family, and a condition like hers
For years we carried Brinlee's journey mostly on our own. This is where we share it: so the people who love her can understand our days, and so anyone facing something similar knows they are not alone.
Updates
Following along
The good days and the hard ones, posted on our Facebook page.
Connect
How you can be part of Brinlee's story
You do not have to do anything big. Following along, sharing her story, or simply checking in on someone who is struggling all mean more than you know.
Follow along
Follow Brinlee on Facebook and walk this road with us.
Share her story
Understanding is its own kind of help, and it reaches people we never could.
Check in on someone
If someone in your life is facing something hard and says they are okay, they often are not. Show up anyway.
Reach out
We would love to hear from you. There is a short contact form on our Connect page.